12.04.2012

Late Update


I'm sorry for not updating sooner! Again, it's only because there has been nothing bad to report, which I like! Kaelyn had her first MRI and set of x-rays following her completion of chemotherapy treatment on November 19 with great results: no cancer! So we proceeded to the next step of having her port removed the following week. I have mixed feelings about this! Kaelyn has to continue to have blood work, x-rays, and ultrasounds every 3 months this year and blood work will be a nightmare without the port. She fights and kicks and screams and it takes many tries to finally get her accessed. I have talked to others who have said their doctors left their child's port in for a year following chemo just to make things easier, and in the event the cancer returns, that leaves one less surgery. It is what it is though, and we'll get through it. There are worse things!
MRI prep.

I didn't think the chemo had too much of an effect on Kaelyn, but recently I am noticing that she has a better appetite and has more energy (in other words, she doesn't want naps anymore... mixed feelings there!).  She is so excited that her hair is growing back, and she tells me this every day. I personally enjoyed not having to wake her up earlier on Sundays to do her hair! I'm going to have to learn all over again as I have been out of practice.

Post port removal.

Finishing up chemo treatment has been more of a transition than I imagined. There wasn't an instant relief like I expected. I actually feel more stressed now than I did while she was getting treatment. I think there is just this constant lingering thought of "what if it comes back?", and for some reason I'm having a hard time shaking that. It's always on my mind. I know I've talked about it before, that her chances are pretty low of recurrence, but it still bothers me. I just have to remember to take it one day at a time and worry about my family's lives today, not what will be going on in a year.


            And, Disney World in 35 days! No snow there!

Stone cold biker.